How it Works:
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People register their advance directive and/or organ donor
information by registering through a member Health Care Provider, Partner or
directly through the Registry. Some member Providers and Partners
offer the service free of charge to their patients, clients, members,
employees and the public. They complete a Registration Agreement that
gives the Registry permission to send a copy of their document to any
authorized provider. Once registered, you are registered for
life. The Registry agrees not to release your information to any
party other than health care providers, so your personal information is kept
private and confidential, just like a medical record.
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The document is electronically stored in the Registry's
computer along with the registrant's emergency contact information.
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The registrant is sent confirmation of their registration
and labels to affix to their insurance card & driver's license, stating that
their advance directive is registered, and a wallet card listing their
Registration #.
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The registrant is contacted annually by mail to confirm that
the advance directive has not been changed or revoked, and to update
personal and emergency contact information. The registrant makes any
changes to personal or emergency contact information, signs the letter
confirming that their advance directive has not been changed or revoked, and
mails the letter back to the Registry. The date of confirmation is
listed on the new wallet card, and is provided whenever the document is
accessed. In this way, there is no doubt as to whether the document
still represents the registrant's wishes. This annual update is free;
there is never a charge to the registrant for annual updates or for
continued registration.
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The Registry is funded by Health Care Providers who pay an
annual fee for unlimited access to the Registry's automated system, and so
that their patients are able to register documents with the Registry.
Also, Partners of the Registry (Attorneys, Financial Planners, Estate Planners,
Insurance Agents, Employers, Accountants, Individual State, County or Local
governments, Insurance Companies, Banks, Financial Services Companies,
Veterans’ Organizations, Automobile Clubs, Internet Health
Organizations/Companies, Organ Donor Organizations, Community Organizations,
Religious Organizations, Retiree/Senior Organizations, etc.) pay an
annual fee so their members, clients or customers can register their
documents. There are two Partner programs: Community Partners
and Professional Registrars. Community Partners are not permitted
to charge a fee to register documents. They can limit registration to
their members, clients, employees and patients if they so choose.
Professional Registrars are permitted to charge a registration
assistance fee when they register a document. For more information on
these programs, click here.
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Health Care Providers can contact the Registry 24 hours a
day to gain access to advance directives, organ donor information and
emergency contact information, or simply to inquire as to whether any
patient has an advance directive.
Member health care providers can use the automated service to request
documents from the Registry by telephone (1-800-LIV-WILL) or via the secure
Internet web site. Member health care providers are assigned
Identification Numbers and Access Codes to use when contacting the Registry.
Providers have the option of receiving documents from the Registry by fax or
via encrypted Internet transmission. By gaining secure access to the
Registry's automated system and entering the patient's Registration #
(or social security if available), health care providers can retrieve a copy
of an advance directive, along with emergency contact and organ donor
information in a matter of seconds. Member providers can also search
for a document by name and birth date.
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Health care providers that are not members of the Registry can access
documents via secure Internet site, by entering the Registration # from the
wallet card. If the wallet card is not available, they can obtain the
document by phone. Non-member providers can obtain documents by
contacting the Registry by phone, and providing information about their
facility and about the person whose document they are trying to retrieve.
Registry personnel will perform a manual transmission of the document.
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